Blog for my weaving and horticulture avocations

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I am the proud granddaughter of Hungarian and Slovakian Immigrants.
This blog is where I share some insights about my avocations of Horticulture and Handweaving.


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Showing posts with label SCT. Show all posts
Showing posts with label SCT. Show all posts

Tuesday, June 27, 2017

DEFEAT MYELOMA - Remission Possible 2017



  Team REMISSION POSSIBLE is running again this year to raise funds for Multiple Myeloma Research.
  DONATIONS  STILL ACCEPTED UNTIL JULY 25!

This is the third year we have participated: 
2015 -a few months after my diagnosis. 
2016 -eight months after my stem cell transplant, 
2017 -I'm now 20 months post transplant, and in my 17th cycle on maintenance meds in a clinical trial. 

Originally we ran under the non-profit volunteer organization of MOVE MMORE, Multiple Myeloma Opprotunities for Research. We are  now known as DEFEAT MYELOMA.  And we continue to  donate all funds, fees and sponsorship income to Fred Hutichinson Research Center specifically for Myeloma research.  
Dr. Damian Green has used these funds in his research. Here he talks about this year's event and what it means for Myeloma and blood cancer patients everywhere. 
http://www.king5.com/life/defeat-multiple-myeloma/451766857

Why do we need the kind of research Dr. Green at Fred Hutch is doing?
Because there is no cure for Myeloma..........
What does incurable mean? --
It means we get treated with one therapy combination until it no longer works. When that one stops working, we have to try another difficult treatment or newly developed chemotherapy. -- One after another, on and on and on, ----
---until there is nothing left that works.
This is why we need the kind of research Dr. Green at Fred Hutch is doing.
And why we need local fundraising in order to get bigger 
grants.


Donations can be made through July 24th at:  https://www.crowdrise.com/remission-possible

ALL DONATIONS ARE MATCHED 1:1 from a generous donor challenging us to raise $100,000. 
We still have ~ $7000 to go! 





     






  








Monday, February 1, 2016

FALL AND WINTER IN THE GARDENS 2015 - 2016

It was a mild winter with a small exception. 

Last November we had some sudden cold days right after the fall rains started the plants into a growing cycle after their very droughty summer.  I was not allowed out in the garden after my stem cell transplant because my immunity was wiped out with the pre transplant chemo.  Fortunately my wonderful caregiver, my husband Frank,  was also up for some hasty garden care in addition to all the housekeeping and cooking he was doing.
so out side he went whenever the weather forecast was for low temps to protect one main plant--the Euphorbia stygiana--which had lots of new tip growth that would be susceptible to the 28 degree nights.  Out came the Christmas lights spread under the plant with a couple sheets over the top. That little extra warmth really worked as the new undamaged growth in spring attests.

Euphorbia stygiana with
fall new growth
cold night protection
with old Christmas lights



But backing up a month to October. 
I was released from SCCA Oct 17th and did not have to stay in downtown housing any longer. This was so much easier on Frank for cooking and caring for me at home. 
But I was still VERY fragile and definitely not allowed out in the gardens for fear of fungal spores etc. in the air. 
There my gardens sat. Not only had very little gardening taken place since July, but no way could I get out to do any fall clean up.

Rescue came in the form of our wonderful horticultural community, called together by Walt Bubelis, one of my hort professors from Edmonds CC. 
On Oct 20th, 20 volunteers of former students, many of which are professional horticulturists, spent all day on a Sunday, cleaning up, transplanting, replanting, cutting back and all the various other fall clean up tasks in my garden. 
I watched from inside the house going from window to window,  as they worked and hauled load after load of old biomass down the hill to the brush piles.  

With much gratitude, as I waited for Spring and my doctors' ok to get back out in the dirt, I could look out all winter and see the much nicer, tidied up gardens.